Job description

Title

Care Coordinator

Reports to

Care Team Manager

The Opportunity

To provide direct consultation and support services on behalf of Synapticure to the ALS community across the US. You will be in charge of providing care coordination and support services to patients, caregivers and loved ones affected by ALS, and building relationships with partners to drive real, measurable change in how people affected by ALS are treated.

Synapticure is a for-profit entity that aims to give all ALS patients access to the best care while fueling the advancement of personalized treatments for every type of ALS. We do so by creating a guided journey for each patient, their caregiver and family that educates and empowers while facilitating access to critical tests and leading experts. De-identified data is then used to both inform personalized treatments for patients today and to speed the development of new targeted therapies for each variant of ALS.

To serve thousands of individuals and their families diagnosed with ALS per year, Synapticure requires effective, knowledgeable and compassionate team members to execute on a new and exciting endeavor in the ALS community.

You

You are passionate about the power of targeted therapies and involving patient voices in these experiences and outcomes. You thrive on direct communication with patients, caregivers and their loved ones and have a passion for working with vulnerable populations. You are thoughtful, organized, curious and empathetic; kind and sincere. You love the ability to impact someone’s life and to learn from their experiences to continually improve. You are eager to be involved in a program from inception and are comfortable with growth, change and evolution to meet the needs of the ALS community. You have a strong knowledge and understanding of current trends in ALS or related neurodegenerative disorders, terminal illnesses, targeted therapies and clinical trials, patient navigation and/or telehealth fields.

Responsibilities

The Care Coordinator will be responsible for supporting members of the ALS community and our partners through phone, email, in person, web portals, chat and texting communications. In collaboration with and under the guidance of the Care Team Manager and other team members, you will execute on the Synapticure CareND program, ensuring the needs of the ALS community are met.

Your Role

The Care Coordinator is a direct support to people affected by ALS. This person oversees the relationship, enrollment, documentation and care experience of ALS patients through the Synapticure program.

• Establishes and manages compassionate relationships with and serves as the primary point of contact for clients, including those diagnosed, caregivers, loved ones, and the larger ALS community.

• Executes on initial patient intakes in order to coordinate connections to neurology experts, genetic experts and research opportunities that likely require the taking of biological samples.

• Maintains working knowledge of research development and other trends and advances in ALS diagnosis, treatment and care.

• Provides advocacy support on behalf of patients and families with clinical providers, billing and insurance companies, and other partners in the care team as needed.

• Provides basic health education including information about diagnosis, treatment and care options, and research opportunities.

• Maintains accountability to ensure high quality standards in client and partner interactions ensuring the highest levels of privacy and confidentiality.

• Develops and adheres to standardized processes including operating procedures, quality assurance and documentation.

• Maintains positive and effective relationships within the multidisciplinary Patient Engagement team to ensure a streamlined and supportive experience for patients.

• Maintains positive and effective relationships with medical and community partners.

• Collaborates with internal teams to ensure appropriate representation of Synapticure to external audiences.

Speaks expertly internally and externally about the program and company. Collaborates on program improvements to address areas not adhering to high levels of efficiencies and effectiveness.

• Adheres to HIPAA guidelines and standards.

If you believe you can deliver on these responsibilities, we encourage you to apply. The ideal

candidate will likely possess some combination of the following qualifications:

• Registered Nurse of Licensed Social Worker (LCSW or equivalent)

• 3+ years working in neurology and knowledgeable regarding neurodegenerative disease

• Experience in direct case or care management.

• Experience with insurance and billing/coding.

• Experience handling and reviewing medical records.

• Experience with clinical trials.

• Experience in ALS, chronic or rare disease space.

• Experience in a startup or organization that has experienced rapid growth and change.

• Exceptional communication skills.

Travel Requirements:

• This position is remote and work would be based in your home. The necessary technology would be provided to work out of your home.

• Travel to Chicago, IL where headquarters are and/or other meetings may be expected.

Salary and Benefits:

• Position is full time/exempt with competitive salary and benefits package including health insurance offering.

• Salary range for this role is competitive depending on the candidate’s level of experience

Job Type: Full-time

Pay: $60,000.00 - $70,000.00 per year

Benefits:

• 401(k)
• 401(k) matching
• Health insurance
• Paid time off

Schedule:

• 8 hour shift
• Monday to Friday

Education:

• Bachelor's (Preferred)

Experience:

• Care Coordination: 3 years (Required)

Work Location: Remote

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